Medical cannabis, Charlotte's Web in particular, is not only stopping seizures but it also healing the brain! And the kicker, Charlotte's Web does not get the patient high.
I grew up sheltered. I was a good kid that followed the rules. So I would have thought I'd be the last person giving my almost-4 year old daughter marijuana. That was before I learned the facts about cannabis. When your child is seizing every day and losing all of her motor skills and has so much brain damage from the seizures that she can't progress developmentally, you start to think outside of the box that the doctors keep you in.
Rayleigh has tried 11 anti-epileptic medications, the Ketogenic Diet, and has the Vagus Nerve Stimulator. None of these have given her seizure control past a honeymoon phase. But Charlotte's Web can give Rayleigh some relief! This natural plant that the Stanley Brothers have bred could be our answered prayer! CBD is the most medically beneficial component of the plant as has anti-epileptic properties and is a neuroprotectant.Charlotte's Web is very high in CBD and contains some of all components from the medical cannabis plant including a very small amount of THC (the psychoactive part of the plant), enough to help but not enough to get a child high. Here's a chart showing the benefits medical cannabis provides:
From Full Spectrum Labs |
Rather than type out all of the facts I have learned, I'll just share some of my favorite videos about Charlotte's Web and medical cannabis benefits are below:
And of course the documentary by Dr. Gupta that got the whole country interested:
The results are AMAZING but Charlotte's Web is medical cannabis, and cannabis of any kind is illegal in Oklahoma, no matter how minute the levels of THC are. Because of the laws here, we will have to move to Colorado for treatment. And soon.
Moving a special needs family is not easy, y'all. We have to start by transferring her daddy's job, then switching insurance and benefits and needless to say we will have to find a new pediatrician, neurologist, epileptologist, GI doctor, neuro-opthomologist and PT/OT/Speech/Vision therapies. And leave behind family, friends and support that cannot ever be replaced in our hearts.
There is a meeting at the State Capitol on February 12th. I will post more on this issue then. For us personally, we are looking at moving to Colorado within the next 6 months to get Rayleigh started on Charlotte's Web ASAP and would like to be able to move back when it is legalized in Oklahoma. We shouldn't have to move away from everything and everyone for our daughter to receive medical treatment.
I'll leave you now with the (paraphrased) words from a dear friend when we first met with some Oklahoma representatives at the State Capitol in October, "There is a plant, a plant that is all natural and can heal my child and save her life, a plant growing 8 hours away that I am NOT ALLOWED to give my child because of where we live!" - Hilary