Bug is to the point where she can sit independently for a few seconds at a time and sits really well if we sit in front of her and hold her hands. She's been fighting tummy time a little more than usual but we're working on it. She has 4 big teeth and is working on more - which makes her irritable to say the least!
On to what you've been waiting for... Trileptol is already showing some promise. We started her on it on a Thursday. The next day, at naptime, she had a small seizure. When I say small I mean it was 40 seconds long, she breathed well the entire time and she was not tensed up throughout the entire thing. This is already such an improvement from what they had been so Michael and I said that even if that's all Trileptol can do for her that it is worth it!
Saturday & Sunday Bug was seizure free!!! Not a single one! She took long naps both days and was able to sleep peacefully without waking up 20 minutes into the nap to have a nasty seizure and fall back asleep for her body to recover. Not one!
Monday Bug woke up at 5 am and went back to sleep around 6:35 am. She woke up with a seizure close to 7 am. This was even smaller than Friday's. The whole thing only lasted 30 seconds and she breathed well throughout again!
She hasn't had one yet (fingers crossed) since Monday mornings. We've been watching her like a hawk when she's asleep in case she has one and doesn't make any noise before or during the seizure. All we can hope is that Trileptol is really working - and that this isn't just another honeymoon phase because I don't know if we can handle that let down again.
We are so happy for Bug to be having so many less seizures right now, it really makes a difference in her behavior. We'll see if it starts to make a difference in her development, too.
Praying that this is the key we've been looking for!
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