Breakthrough or Isolated???

Yesterday morning at 8:20a I had a rude awakening. Literally. Rayleigh woke up with a seizure. A small one lasting 32 seconds. She woke up, made a squeal/grunt noise, locked up and then relaxed but her face was still in the seizure. She made the noise for about 3 seconds and was locked up for about 10 seconds and then the rest of the time her eyes were looking to the right and blinking and she kind of smacked her lips. When it was over she relaxed for a few seconds and then woke on up, ate and played for a little while. This one didn't hurt her at all, didn't make her tired or irritable. We called Dr. Coleman and left a message with the receptionist and waited for his return call. And waited. And waited. It was really only a few hours but when you're waiting for something like that it always seems like days have passed!

Michael talked to Dr. Coleman and explained what had happened and asked a bunch of questions (like we always do!) like "Is she having a breakthrough?", "Do we need to get her back on Keppra?", "Is it time to increase her dose of Phenobarb?" and "Is this brought on by stress of teething?"

Dr. Coleman believes that this was an isolated event brought on by stress or maybe a small fever from teething. He said to call him if she has another seizure and we may need to up the dose of the Phenobarb. We do not need to add Keppra, as it was not doing anything for her. Dr. Coleman doesn't think that this is a full on breakthrough because is responding well to the Phenobarb and it was the only one in that day and it was not an intense seizure compared to her previous ones. He still thinks that the Phenobarbital is the medicine she needs to stay on because she went so long without a seizure while on it. He said that anytime she is sick, stressed or overtired she is more likely to have a seizure. So we just have to wait and see if she has anymore to determine if we need to up her dose of medicine or switch or have more tests done.

She only had the one yesterday at 8:20a and has not had any today so that's a good sign and shows that yesterday's was probably just an isolated seizure do to the stress or maybe a small fever from teething.

Today she had 2 shots, HIB and PVC, so hopefully the stress from that doesn't bring on another seizure. She only cried for the initial prick of the needle and hasn't been fussy since so there's another good sign!