Bug in Air

Bug in Air

Monday, May 14, 2012

Just a Quick Note

So I don't have a lot of time to post, Bug is getting antsy and Sesame Street is almost over!

Bug had an EEG a couple Fridays ago and then a follow-up appointment with her neuro the following Wednesday. He said that there is some improvement! Woo-hoo!

It was funny, when he told us the news, neither my husband and I were expecting to hear that so we both were like "Really?!?" "Are you sure?" We weren't trying to imply that he didn't know what he was talking about, we were just shocked!

See, the thing is, since we weaned her off the Sabril medicine and started the Vimpat medicine (still on Clobazam and the Ketogenic Diet) she started having less headdrops but more small partial-type seizures.

So her background activity has normalized a bit, meaning that there are not as many spikes and slowing as there were on the previous 2 EEGs. She's still having spikes but between the new medicine and getting her ketones as high as possible, we've controlled some of the seizure and epileptic spasm activity.

This is great because the less spasm activity there is, the more room for development improvement we have!



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